Hello all!
Well, the good news is that I haven't had to leave the house all day... however! The bad news is that I've been energyless all day!
It just goes to show that when you have a good day like I did on Wednesday, you will pay for it at some point afterwards!
The last 2 days have consisted of lots of lying down and well... not much else!
It's currently 18:50 and I'm due to make tea in about an hour - lets hope it's not too strenous...
I'd like to get my vocal workout done but it might be aiming a little too far to attempt some songs... very gentle exercise and maybe 10 minutes on the piano.
Tomorrow I will be meeting a friend for coffee, something I haven't done much of recently due to either not being up to it or pre-planned arrangements.
Lets hope that tomorrow is a better day!
Barry x
Friday, 31 January 2014
Thursday, 30 January 2014
M.E. - The Dentist
Hello all!
Well today hasn't been a great day... I think the last couple of days have caught up with me. I had the dreaded trip to the dentist in the morning! Not because I was worried about having anything done but because it involves me driving into town and walking a shortish distance! Anyway... the dentist told me I was looking after my teeth very well - that's another benefit to a healthy diet... healthy teeth, as long as you brush them too of course! He always asks me about my M.E. and is understanding so it's great that someone on the outside world actually understands... no explaining needs to be done! :)
I was finished late morning, went home and pretty much crashed out on my bed... watched a little bit of t.v. and made all my meals and buy early evening time I had crashed out again, this time for around 2 hours at a guess... I woke up around 8.30pm so my tea was quite late!
Anyway, lets hope tomorrow is a better day... maybe I won't have to leave the house!!
Hope you've all had a great day...
Barry x
Well today hasn't been a great day... I think the last couple of days have caught up with me. I had the dreaded trip to the dentist in the morning! Not because I was worried about having anything done but because it involves me driving into town and walking a shortish distance! Anyway... the dentist told me I was looking after my teeth very well - that's another benefit to a healthy diet... healthy teeth, as long as you brush them too of course! He always asks me about my M.E. and is understanding so it's great that someone on the outside world actually understands... no explaining needs to be done! :)
I was finished late morning, went home and pretty much crashed out on my bed... watched a little bit of t.v. and made all my meals and buy early evening time I had crashed out again, this time for around 2 hours at a guess... I woke up around 8.30pm so my tea was quite late!
Anyway, lets hope tomorrow is a better day... maybe I won't have to leave the house!!
Hope you've all had a great day...
Barry x
Wednesday, 29 January 2014
M.E. - WRAG group drama
Hello there!
1st of all, I have my car back though it's costing me £400 - ouch!
2nd of all, I crashed out for half an hour at 12pm but despite that I had a very good day... very good in the fact I felt relaxed it had been very productive for me. I updated my blogs, I got bits of leisure activity in there, I cooked tea, did a gentle workout and read a book in bed which I haven't done for a while... having said that, I was in bed around 11pm and didn't get up this morning till past 10am!!! Must have needed it!
Right, onto today...
Well it really is beyond belief... As you probably know, I had to attend a Work-Related Activity Group today to help me prepare to get back into work despite being unable to health wise. So I got to the place for 11am and when I arrived, I spoke to a lady who said they were closed today... Bit of an awkward silence... Apparently I wasn't even on their system?! On my letter it had a London address which I thought was surely a misprint but in fact it wasn't a misprint! My appointment was actually down in London... For those who don't know, I live in a little town called Southport near Liverpool! A few things I couldn't get my head around... 1st of all, it was confirmed the location of this appointment on the phone and face to face... 2nd of all the letter that was sent out to me saying I had an appointment in London was sent to a PR postcode... and I'm pretty sure most people would know that PR is a Preston postcode so surely someone would have twigged on before sending the letter out? Obviously not!
So anyway, I'm being sent another letter in the post asap to arrange another appointment!
Do you ever feel like the World is against you sometimes?!... Well the Government more like...
Hope you're all having a better day than I am so far!
Barry x
1st of all, I have my car back though it's costing me £400 - ouch!
2nd of all, I crashed out for half an hour at 12pm but despite that I had a very good day... very good in the fact I felt relaxed it had been very productive for me. I updated my blogs, I got bits of leisure activity in there, I cooked tea, did a gentle workout and read a book in bed which I haven't done for a while... having said that, I was in bed around 11pm and didn't get up this morning till past 10am!!! Must have needed it!
Right, onto today...
Well it really is beyond belief... As you probably know, I had to attend a Work-Related Activity Group today to help me prepare to get back into work despite being unable to health wise. So I got to the place for 11am and when I arrived, I spoke to a lady who said they were closed today... Bit of an awkward silence... Apparently I wasn't even on their system?! On my letter it had a London address which I thought was surely a misprint but in fact it wasn't a misprint! My appointment was actually down in London... For those who don't know, I live in a little town called Southport near Liverpool! A few things I couldn't get my head around... 1st of all, it was confirmed the location of this appointment on the phone and face to face... 2nd of all the letter that was sent out to me saying I had an appointment in London was sent to a PR postcode... and I'm pretty sure most people would know that PR is a Preston postcode so surely someone would have twigged on before sending the letter out? Obviously not!
So anyway, I'm being sent another letter in the post asap to arrange another appointment!
Do you ever feel like the World is against you sometimes?!... Well the Government more like...
Hope you're all having a better day than I am so far!
Barry x
Tuesday, 28 January 2014
M.E. - Introductory Blog
So 1st of all, here's my latest M.E. Vlog regarding recent events! - http://www.youtube.com/watch?v=Wu6-eWzYlcc
And 2nd of all, here's my Introductory Vlog I did almost a year ago regarding the background history to my M.E. diagnosis - http://www.youtube.com/watch?v=JE61Vd6Wap8
Ok, so now I've shared those links with you, I'll share just 1 more! http://www.youtube.com/playlist?list=PLvX-06vtGjR5FJTp0iCJ-C135yKG5jF45 - This is a playlist to all my previous M.E. Vlogs. :)
So this morning, 28th of January (the year's flying by already!) and as we speak it's 09:07am!!?? I was up before 08:00am??!! The reason is that my car is in for its MOT. Surprisingly when I woke up this morning I didn't feel as bad as I thought I would so after dropping my car off, I decided to walk down the road before calling a taxi home just to see how I got on. At the time I felt fine, had all these ideas of getting all my jobs done this morning so I can relax more this afternoon and here I am with very painful legs and fairly heavy brain fog. I can't remember all of what I've written so far, I type as I think and it may not always make sense!
So lets see what the rest of the day has to bring - I'm thinking painkillers before breakfast!!!
Hope everyone has a lovely day!
Barry x
And 2nd of all, here's my Introductory Vlog I did almost a year ago regarding the background history to my M.E. diagnosis - http://www.youtube.com/watch?v=JE61Vd6Wap8
Ok, so now I've shared those links with you, I'll share just 1 more! http://www.youtube.com/playlist?list=PLvX-06vtGjR5FJTp0iCJ-C135yKG5jF45 - This is a playlist to all my previous M.E. Vlogs. :)
So this morning, 28th of January (the year's flying by already!) and as we speak it's 09:07am!!?? I was up before 08:00am??!! The reason is that my car is in for its MOT. Surprisingly when I woke up this morning I didn't feel as bad as I thought I would so after dropping my car off, I decided to walk down the road before calling a taxi home just to see how I got on. At the time I felt fine, had all these ideas of getting all my jobs done this morning so I can relax more this afternoon and here I am with very painful legs and fairly heavy brain fog. I can't remember all of what I've written so far, I type as I think and it may not always make sense!
So lets see what the rest of the day has to bring - I'm thinking painkillers before breakfast!!!
Hope everyone has a lovely day!
Barry x
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