Latest #Spoonie Vlog, this time about the difficulties of study!
Here's the playlist: https://www.youtube.com/playlist?list=PLvX-06vtGjR590vqaAofP2A48AiTbOgmK
Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts
Monday, 18 April 2016
Tuesday, 12 April 2016
#Spoonie Virus - 4
Thanks everyone for the lovely comments and support re my latest vlogs. I am aware there's people who have messaged me and I promise I will get back to you but it's been a very stressful week that's been taken over with coursework, hence no vlog yesterday trying to get it done ASAP! Hope you're all having a pain free day x
Here's the playlist: https://www.youtube.com/playlist?list=PLvX-06vtGjR590vqaAofP2A48AiTbOgmK
Here's the playlist: https://www.youtube.com/playlist?list=PLvX-06vtGjR590vqaAofP2A48AiTbOgmK
Saturday, 9 April 2016
#Spoonie Relationships - 2
This is my new #spoonie series to help raise awareness for invisible chronic illnesses and to also connect with other #spoonies. Vids will be no longer than 5 minutes long making it more watchable for those who struggle. Basically these are just my views on particular subjects that I hope others can relate to.
https://www.youtube.com/playlist?list=PLvX-06vtGjR590vqaAofP2A48AiTbOgmK
https://www.youtube.com/playlist?list=PLvX-06vtGjR590vqaAofP2A48AiTbOgmK
Friday, 8 April 2016
#Spoonie Birthday's - 1
This is my new #spoonie series to help raise awareness for invisible chronic illnesses and to also connect with other #spoonies. Vids will be no longer than 5 minutes long making it more watchable for those who struggle. Basically these are just my views on particular subjects that I hope others can relate to.
Monday, 4 April 2016
Saturday, 2 April 2016
Wednesday, 1 April 2015
My typical day!
Hello everyone!
I just wanted to share a picture with you that a friend had shared on facebook. I feel like this picture summarises my life at the moment very well.
Every morning is a massive struggle because I'm exhausted. It's the worst time of day for me. The pain is at its worst and my brain is so foggy that my head keeps dropping.
If I've mustered up enough energy to rise and shine in the morning then I'm dying for a nap come afternoon. Having said that, I'm dying to nap even when I haven't had the energy to rise and shine in the morning.
It's impossible to get through the day without some sort of rest which means it's hard to sleep at night. Even when I'm shattered at night I can't sleep.
This pattern recycles itself daily and although some days are better, the pattern is still there.
I'm sure a lot of you can relate to this which is why I've shared it.
Hope you're all having bearable weeks x
I just wanted to share a picture with you that a friend had shared on facebook. I feel like this picture summarises my life at the moment very well.
Every morning is a massive struggle because I'm exhausted. It's the worst time of day for me. The pain is at its worst and my brain is so foggy that my head keeps dropping.
If I've mustered up enough energy to rise and shine in the morning then I'm dying for a nap come afternoon. Having said that, I'm dying to nap even when I haven't had the energy to rise and shine in the morning.
It's impossible to get through the day without some sort of rest which means it's hard to sleep at night. Even when I'm shattered at night I can't sleep.
This pattern recycles itself daily and although some days are better, the pattern is still there.
I'm sure a lot of you can relate to this which is why I've shared it.
Hope you're all having bearable weeks x
Tuesday, 3 March 2015
February's update...
Hello everyone, it's been a month since I last updated this so I thought I'd give you a (fairly) brief update. Some of you will have seen my most recent vlog which still managed to be 8 minutes long! If you want to view that then just click the following link: https://www.youtube.com/watch?v=EcVZ5ViJA-c
It's nice to have such great support from new friends I've made over the past year, a couple of years ago I felt like no-one listened to me but I've been introduced to some of the nicest people I've ever known, in fact THE nicest! It doesn't always matter how often you see someone in the flesh as long as it's genuine. Anyway, back to the update...
I'm quite foggy so I get my dates and times mixed up a lot but I'll do the best I can...
The first thing that comes to mind is the dreaded WRAG group. I mentioned this briefly in the video link above but if you haven't seen that then I'll explain here the situation.
When applying for Employment Support Allowance (which I really don't like doing as I want to be able to work as soon as possible) I had to attend a medical a couple of years back. Obviously I failed as a lot of you will know how irrelevant it is to an illness like ME. This is because they don't take into consideration a lot of things like the after effect to overexertion and how the illness fluctuates a lot and isn't 'visible'. Anyway, I had to attend a tribunal the following December (just over a year ago now) and I won the appeal. When you win the appeal you are placed into 1 of 2 groups. The first 1 is the support group and the second one is WRAG. With WRAG (Work Related Assessment Group) it is mandatory that you have appointments with your adviser who keeps a check on your progress and tries to get you back into work.
The above is fair enough but when my health had worsened, my adviser was still pressurizing me to attend workshops and courses. My Occupational Therapist at the hospital even wrote my adviser a letter explaining how I'm unable to attend anything over an hour long as it was likely to worsen my symptoms (fatigue/pain/brain fog amongst many others). The problem is that my adviser just ignored this letter of support from my OT and continued to pressurize me into attending something so that "she could show her boss that she'd done something with me". She actually said that, which basically means she'll do anything to tick the boxes and doesn't care less about a person's health.
I then had a meeting with my local MP who actually wrote a letter to WRAG before my next appointment which was a couple of weeks ago. This letter was ignored too! In fact as I'm writing this my MP STILL hasn't had a response from them. In short, the letter was asking them why they were trying to send me on these courses when they had a medical report in front of them. I had another letter from my MP last week saying he was still waiting for a reply. It beggars belief... And to add insult to injury, this particular course I was being sent on was a 'Psychological Motivation Course'. Something which is totally irrelevant to me...
So it's an ongoing situation and I'm sure some of you can relate to this.
The second thing that comes to mind is mixed emotions with stress being the biggest one. This is over the past couple of weeks in particular, again I explain in the video about this.
Recently, I've had a few animals who have passed away in quick succession. I've been having very bad luck with my rats. There have been over 10 tumours within the past half year on 6 rats. I'm down to 2 now and 1 of them has cancer which is growing by the day. My giant rabbit Harvey also passed away a couple of weeks ago. It's been quite upsetting as with an illness like this, having animals is a great comfort to me.
Also, I mention that there's been a situation going on which has been on my mind a lot but I wouldn't elaborate. Some of you will know what I'm talking about but the reason I'm mentioning this is because it's added to the stress I've already been experiencing recently. It's a very difficult one and I continue to ask my Christian friends to pray about this as that's the only answer at the moment.
I've also come off my pain relief tablets which I didn't think were working but maybe they were as the pain has been almost unbearable the past few days. It's added to the fatigue as well and I literally cannot do as much as I could even a few weeks ago. I'm fighting against it but sometimes your body just drops and you can't move, I hate being in bed but that's the only place I can get some sort of relief at the moment. I've been managing to get out of the house but it's difficult and public places are a daunting prospect with the big crowds, even the slightest noises can make me feel ill so it's a difficult one.
My OT wants to discharge me next time I see her which is a worry as my GP is of little support to me. I applied to join another surgery near to me but it was deemed not local enough to accept me. My OT is the only person who provides me with support letters but she did say that she's referring me to a pain clinic. The only problem is I'd have to attend for full days which is not possible at the moment.
On a positive note, I got to go and see my biggest musical inspirations ever LIVE. Adam Lambert & Queen were amazing, it took a lot out of me and I couldn't even look at the stage in parts due to the flashing lights but I still thoroughly enjoyed it.
Walking is a massive struggle and I struggled with it that night, the furthest I've walked for months is only a matter of yards. I'm not using my crutch/stick as much but I still can't walk a further distance than I could. I've not even been into my town center for the past year because there's nowhere to park. I'm in the process of applying for blue badge but these things take time.
It's becoming harder to do anything, 1 bit of exercise is too much which upsets me, even a little singing practice. I have a singing teacher but I can't practice half of the time which frustrates me a lot. There's so much I want to do. It's been very difficult getting my latest book done, I planned to have it out a while ago but it's just not been possible. I feel like half of my body is working but the other half has just totally given up and it's a case of balancing the 2 out!
I think I've covered most things here and I hope it isn't too long for you! I'll be sure to come back if I've missed anything out! Thank you all for reading...
Barry x
It's nice to have such great support from new friends I've made over the past year, a couple of years ago I felt like no-one listened to me but I've been introduced to some of the nicest people I've ever known, in fact THE nicest! It doesn't always matter how often you see someone in the flesh as long as it's genuine. Anyway, back to the update...
I'm quite foggy so I get my dates and times mixed up a lot but I'll do the best I can...
WRAG
The first thing that comes to mind is the dreaded WRAG group. I mentioned this briefly in the video link above but if you haven't seen that then I'll explain here the situation.
When applying for Employment Support Allowance (which I really don't like doing as I want to be able to work as soon as possible) I had to attend a medical a couple of years back. Obviously I failed as a lot of you will know how irrelevant it is to an illness like ME. This is because they don't take into consideration a lot of things like the after effect to overexertion and how the illness fluctuates a lot and isn't 'visible'. Anyway, I had to attend a tribunal the following December (just over a year ago now) and I won the appeal. When you win the appeal you are placed into 1 of 2 groups. The first 1 is the support group and the second one is WRAG. With WRAG (Work Related Assessment Group) it is mandatory that you have appointments with your adviser who keeps a check on your progress and tries to get you back into work.
The above is fair enough but when my health had worsened, my adviser was still pressurizing me to attend workshops and courses. My Occupational Therapist at the hospital even wrote my adviser a letter explaining how I'm unable to attend anything over an hour long as it was likely to worsen my symptoms (fatigue/pain/brain fog amongst many others). The problem is that my adviser just ignored this letter of support from my OT and continued to pressurize me into attending something so that "she could show her boss that she'd done something with me". She actually said that, which basically means she'll do anything to tick the boxes and doesn't care less about a person's health.
I then had a meeting with my local MP who actually wrote a letter to WRAG before my next appointment which was a couple of weeks ago. This letter was ignored too! In fact as I'm writing this my MP STILL hasn't had a response from them. In short, the letter was asking them why they were trying to send me on these courses when they had a medical report in front of them. I had another letter from my MP last week saying he was still waiting for a reply. It beggars belief... And to add insult to injury, this particular course I was being sent on was a 'Psychological Motivation Course'. Something which is totally irrelevant to me...
So it's an ongoing situation and I'm sure some of you can relate to this.
Stress
Recently, I've had a few animals who have passed away in quick succession. I've been having very bad luck with my rats. There have been over 10 tumours within the past half year on 6 rats. I'm down to 2 now and 1 of them has cancer which is growing by the day. My giant rabbit Harvey also passed away a couple of weeks ago. It's been quite upsetting as with an illness like this, having animals is a great comfort to me.
Also, I mention that there's been a situation going on which has been on my mind a lot but I wouldn't elaborate. Some of you will know what I'm talking about but the reason I'm mentioning this is because it's added to the stress I've already been experiencing recently. It's a very difficult one and I continue to ask my Christian friends to pray about this as that's the only answer at the moment.
I've also come off my pain relief tablets which I didn't think were working but maybe they were as the pain has been almost unbearable the past few days. It's added to the fatigue as well and I literally cannot do as much as I could even a few weeks ago. I'm fighting against it but sometimes your body just drops and you can't move, I hate being in bed but that's the only place I can get some sort of relief at the moment. I've been managing to get out of the house but it's difficult and public places are a daunting prospect with the big crowds, even the slightest noises can make me feel ill so it's a difficult one.
My OT wants to discharge me next time I see her which is a worry as my GP is of little support to me. I applied to join another surgery near to me but it was deemed not local enough to accept me. My OT is the only person who provides me with support letters but she did say that she's referring me to a pain clinic. The only problem is I'd have to attend for full days which is not possible at the moment.
On a positive note, I got to go and see my biggest musical inspirations ever LIVE. Adam Lambert & Queen were amazing, it took a lot out of me and I couldn't even look at the stage in parts due to the flashing lights but I still thoroughly enjoyed it.
Walking is a massive struggle and I struggled with it that night, the furthest I've walked for months is only a matter of yards. I'm not using my crutch/stick as much but I still can't walk a further distance than I could. I've not even been into my town center for the past year because there's nowhere to park. I'm in the process of applying for blue badge but these things take time.
It's becoming harder to do anything, 1 bit of exercise is too much which upsets me, even a little singing practice. I have a singing teacher but I can't practice half of the time which frustrates me a lot. There's so much I want to do. It's been very difficult getting my latest book done, I planned to have it out a while ago but it's just not been possible. I feel like half of my body is working but the other half has just totally given up and it's a case of balancing the 2 out!
I think I've covered most things here and I hope it isn't too long for you! I'll be sure to come back if I've missed anything out! Thank you all for reading...
Barry x
Thursday, 1 January 2015
Life Is Complicated: New Book Announcement!
Hello everyone and a very Happy New Year!
Mine didn't get off to the best start when I woke up just before midday though I must've needed the sleep!
A couple of posts ago I talked about what I wanted to achieve this year so I'm not going to mention my goals in this post.
One thing that is probably a few weeks away from being complete is my new book titled "Life Is Complicated: My journey with Asperger Syndrome". It's been hard writing it but will be very rewarding in the end. I think you'll like it and there's a lot more detail and humour added in. I think too if you're a neutral then you'll most likely prefer reading my 2nd book... that's if you like dry humour!
Here's 10 humorous quotes to keep you amused and these are handpicked from only 3 of the 15 chapters!
"My facial expressions didn't help either. I could have been singing a very up-tempo song but going by my face you'd think I was singing a ballad at a funeral"
"I love numbers but not the number 4"
"Being given ice cream with a spoon already in the bowl was a nightmare"
"Using my fingers as a gun with the thumb acting as a trigger shouting "bang, you're dead" didn't really get my adrenaline going much"
"A little bit of spit flew out of someone's straw when they were messing about and onto Ronald McDonald in the center of my birthday cake"
"It took me a while to grasp but I went the other way and started doing it all the time like a nodding dog. I was lucky I didn't get whiplash"
"If they're wearing a fluffy animal print coat then it might sway me"
"I made a point of shaking hands and then craftily as I saw down I might rub my hand on the chair or my trouser leg"
"People don't know if I'm being serious or not and that's part of the humour. It gives me that get out of jail card if I say something inappropriate"
"At least my forehead won't need ironing out in 20 years time unless I have a major mid-life crisis"
To help get word about about my new book, I'm giving all kindle users a chance to purchase my first book "A New ME" from the 3rd January to the 7th January for FREE. It's available in ALL countries too!
http://www.amazon.co.uk/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=sr_1_1?s=books&ie=UTF8&qid=1420158128&sr=1-1&keywords=a+new+me
Above is the UK link.
http://www.amazon.com/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=sr_1_2?ie=UTF8&qid=1420158234&sr=8-2&keywords=a+new+me
Above is the US link.
Oh, and don't forget to share and leave a review!
Thank you.... 3rd January everyone!
Happy New Year!
Barry x
Mine didn't get off to the best start when I woke up just before midday though I must've needed the sleep!
A couple of posts ago I talked about what I wanted to achieve this year so I'm not going to mention my goals in this post.
One thing that is probably a few weeks away from being complete is my new book titled "Life Is Complicated: My journey with Asperger Syndrome". It's been hard writing it but will be very rewarding in the end. I think you'll like it and there's a lot more detail and humour added in. I think too if you're a neutral then you'll most likely prefer reading my 2nd book... that's if you like dry humour!
Here's 10 humorous quotes to keep you amused and these are handpicked from only 3 of the 15 chapters!
"My facial expressions didn't help either. I could have been singing a very up-tempo song but going by my face you'd think I was singing a ballad at a funeral"
"I love numbers but not the number 4"
"Being given ice cream with a spoon already in the bowl was a nightmare"
"Using my fingers as a gun with the thumb acting as a trigger shouting "bang, you're dead" didn't really get my adrenaline going much"
"A little bit of spit flew out of someone's straw when they were messing about and onto Ronald McDonald in the center of my birthday cake"
"It took me a while to grasp but I went the other way and started doing it all the time like a nodding dog. I was lucky I didn't get whiplash"
"If they're wearing a fluffy animal print coat then it might sway me"
"I made a point of shaking hands and then craftily as I saw down I might rub my hand on the chair or my trouser leg"
"People don't know if I'm being serious or not and that's part of the humour. It gives me that get out of jail card if I say something inappropriate"
"At least my forehead won't need ironing out in 20 years time unless I have a major mid-life crisis"
To help get word about about my new book, I'm giving all kindle users a chance to purchase my first book "A New ME" from the 3rd January to the 7th January for FREE. It's available in ALL countries too!
http://www.amazon.co.uk/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=sr_1_1?s=books&ie=UTF8&qid=1420158128&sr=1-1&keywords=a+new+me
Above is the UK link.
http://www.amazon.com/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=sr_1_2?ie=UTF8&qid=1420158234&sr=8-2&keywords=a+new+me
Above is the US link.
Oh, and don't forget to share and leave a review!
Thank you.... 3rd January everyone!
Happy New Year!
Barry x
Saturday, 13 December 2014
New Year, Big Plans!
Hello everyone, I hope you're all having a fabulous weekend so far...
The past few months have been pretty up and down for me but I'm going to focus on the ups...
What am I doing at the moment?
Well I've been writing my 2nd book, it's been a lot more difficult than my 1st book. There's more content and my M.E. symptoms have fluctuated a fair bit since I started writing. However, there's not too much more to do on it. I'm going to have it done hopefully before Christmas but the I will be promoting it more in the New Year. This has been my main focus. I've also been practicing the singing when I can, it must seem forever but these things take time. I've also been pretty tied up with my little ratties. I adopted Gracie, Mags and Pumpkin around a month ago and within days I discovered tumours on all 3 of them. They've been operated on now but they've pulled the stitches out of their wounds. Gracie had staples and they came out too leaving a gaping hole in her tummy, she's required extra attention as 2-3 times a day I have to bathe her wound, put gel in it and give her antibiotics. I guess it's good preparation for when I have a kid of my own, I'm talking more about the caring and not the bathing wounds...
What are next years plans for me?
Well this part of the post is the focal point. The most important point. I'm going to briefly summarise this year and then see how next year can be a better one.
Positives gained from this year:
I'm calling these targets as I don't like the word resolutions. I've never known anyone who sticks to them! These targets I've set I see as doable and I really feel that 2015 is the year big changes will occur.
Exercise - this has been difficult this year but I'm finding what's working for me. I'm finding very gradually I can do more than I could a few months back though still a long way from the "average" person. I've worked the legs which I couldn't have done just months ago even if the weights are light.
I may sign up to a gym and see how it goes. Getting it done in the morning, getting past that "feel like I've been hit by a bus" feeling in the morning and strengthening my body. It may not work but I feel I'm at a point where I can give it a go. I've also decided I'm going to lose weight, get rid of the excess fat and build the weight back up gradually.
Study - this has been difficult to do during the past year but I'm determined that it needs to be done in order to progress with the things I want to do. I'm currently enrolled on 2 courses. A theology course, the aim is not to put back the deadline like I've been continually doing and dedicating certain times of day to do this. The same goes for the nutrition course I'm signed up to.
Personal Training - those who know me will know that this is something I'm qualified in. I also have a degree in business and management and feel the 2 combined can be a real bonus for me. I purchased a web name a year ago and have never done anything with it. This year, I am determined to actually get the website underway and gradually building it up.
Music - Singing is something I've stuck to and I aim to keep on doing it. I've been lacking with piano practice however and this will change next year. I'm working towards writing my own material which won't be possible if I don't keep practicing the 2 so this is a big target for me.
Writing - Well this is secondary to everything above. I've never considered myself an author yet will have 2 books out by the end of the year. It's been great to get my thoughts out onto paper and help raise awareness for different causes. Blogging also comes into this category, I aim to keep my 7 blogs updated even if each blog has 1 update per week. It's doable with a little organising.
Modelling - again, this is secondary as I can't do this without getting back into shape! When I previously modelled, it was a confidence boost and I met some great people whilst making some friends. It's something I'd like to continue doing which can help with my other targets like website promotion etc.
Fresh air - I say this because I've certainly lacked it this year. I've felt at times I've been turning into a hermit which of course I don't want to happen. I always feel better after I've made a trip out of the house so it's a doable aim which will be beneficial for me.
Conclusion:
I always like a conclusion, I feel I've ended something well if there's a conclusion!
You may look at the above and think that this is not possible for someone with M.E. but this is the year I push myself. I may have setbacks but you don't know until you try. I've had 2 years experience of being cautious and listening to my bodies needs, I know when to stop and when to push myself. It's taken time but I've found roughly the right balance.
This time next year I want to view this blog and see the progress I've made. I never break promises and progress WILL be made.
Post any thought underneath, thank for reading!
Barry x
The past few months have been pretty up and down for me but I'm going to focus on the ups...
- My mobility has improved a lot over the past few months, my walking stick isn't being used as much though I've only been keeping to very short distances. Any more than a few minutes walking and my legs start to stiffen and ache quite rapidly.
- Overall, the mid-day naps aren't occurring as much. Since Winter has arrived, it's been very difficult to keep that up as the colder weather is having a great effect on me fatigue and pain wise.
- I've managed to stick to routines more. Having Asperger's means that routines are a must. This includes things like meals, cleaning, hobbies and anything else that needs doing.
What am I doing at the moment?
Well I've been writing my 2nd book, it's been a lot more difficult than my 1st book. There's more content and my M.E. symptoms have fluctuated a fair bit since I started writing. However, there's not too much more to do on it. I'm going to have it done hopefully before Christmas but the I will be promoting it more in the New Year. This has been my main focus. I've also been practicing the singing when I can, it must seem forever but these things take time. I've also been pretty tied up with my little ratties. I adopted Gracie, Mags and Pumpkin around a month ago and within days I discovered tumours on all 3 of them. They've been operated on now but they've pulled the stitches out of their wounds. Gracie had staples and they came out too leaving a gaping hole in her tummy, she's required extra attention as 2-3 times a day I have to bathe her wound, put gel in it and give her antibiotics. I guess it's good preparation for when I have a kid of my own, I'm talking more about the caring and not the bathing wounds...
What are next years plans for me?
Well this part of the post is the focal point. The most important point. I'm going to briefly summarise this year and then see how next year can be a better one.
Positives gained from this year:
- It's given me more time to adjust to my bodies needs like how to pace and how far I can push myself without receiving too much payback.
- I've become more independent and found it easier coping with others lack of understanding towards the condition.
- I wrote my 1st book which I would never have dreamed of just month ago.
- I've had a year practicing singing and made big improvements thought still a long way to go.
- It's become more clear in my mind what direction I want to go.
I'm calling these targets as I don't like the word resolutions. I've never known anyone who sticks to them! These targets I've set I see as doable and I really feel that 2015 is the year big changes will occur.
Exercise - this has been difficult this year but I'm finding what's working for me. I'm finding very gradually I can do more than I could a few months back though still a long way from the "average" person. I've worked the legs which I couldn't have done just months ago even if the weights are light.
I may sign up to a gym and see how it goes. Getting it done in the morning, getting past that "feel like I've been hit by a bus" feeling in the morning and strengthening my body. It may not work but I feel I'm at a point where I can give it a go. I've also decided I'm going to lose weight, get rid of the excess fat and build the weight back up gradually.
Study - this has been difficult to do during the past year but I'm determined that it needs to be done in order to progress with the things I want to do. I'm currently enrolled on 2 courses. A theology course, the aim is not to put back the deadline like I've been continually doing and dedicating certain times of day to do this. The same goes for the nutrition course I'm signed up to.
Personal Training - those who know me will know that this is something I'm qualified in. I also have a degree in business and management and feel the 2 combined can be a real bonus for me. I purchased a web name a year ago and have never done anything with it. This year, I am determined to actually get the website underway and gradually building it up.
Music - Singing is something I've stuck to and I aim to keep on doing it. I've been lacking with piano practice however and this will change next year. I'm working towards writing my own material which won't be possible if I don't keep practicing the 2 so this is a big target for me.
Writing - Well this is secondary to everything above. I've never considered myself an author yet will have 2 books out by the end of the year. It's been great to get my thoughts out onto paper and help raise awareness for different causes. Blogging also comes into this category, I aim to keep my 7 blogs updated even if each blog has 1 update per week. It's doable with a little organising.
Modelling - again, this is secondary as I can't do this without getting back into shape! When I previously modelled, it was a confidence boost and I met some great people whilst making some friends. It's something I'd like to continue doing which can help with my other targets like website promotion etc.
Fresh air - I say this because I've certainly lacked it this year. I've felt at times I've been turning into a hermit which of course I don't want to happen. I always feel better after I've made a trip out of the house so it's a doable aim which will be beneficial for me.
Conclusion:
I always like a conclusion, I feel I've ended something well if there's a conclusion!
You may look at the above and think that this is not possible for someone with M.E. but this is the year I push myself. I may have setbacks but you don't know until you try. I've had 2 years experience of being cautious and listening to my bodies needs, I know when to stop and when to push myself. It's taken time but I've found roughly the right balance.
This time next year I want to view this blog and see the progress I've made. I never break promises and progress WILL be made.
Post any thought underneath, thank for reading!
Barry x
Wednesday, 27 August 2014
A New ME - LIMITED OFFER!
Hello all, so here's the offer I was telling you about!
Considering my book hasn't had any real marketing, it's done pretty well so thank you to those who have bought it.
However, I'd like to raise even more awareness and raise more money for "Invest in ME".
Considering my book hasn't had any real marketing, it's done pretty well so thank you to those who have bought it.
However, I'd like to raise even more awareness and raise more money for "Invest in ME".
I've decided that for 7 days, both paperback and kindle copies will be
cheaper. Not only that, but ALL money made from sales during this period
will to go "Invest in ME".
After the 7 days, I will round up the total raised to the nearest "0" and post it on here. I will also screenshot the screen when I make the donation.
I will post again when this offer starts and post around the M.E. groups on here and also on Twitter.
It is available in ALL countries too but here I will post links for the UK & US Amazon:
UK Paperback - £3.94 http://www.amazon.co.uk/A-New-ME-Looking-future/dp/1499585497/ref=sr_1_1_bnp_1_pap?ie=UTF8&qid=1409036494&sr=8-1&keywords=a+new+me
UK Kindle - £1.85 http://www.amazon.co.uk/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=tmm_kin_swatch_0?_encoding=UTF8&sr=8-1&qid=1409036494
US Paperback - $6.55 http://www.amazon.com/A-New-ME-Looking-future/dp/1499585497/ref=tmm_pap_title_0?ie=UTF8&qid=1409037317&sr=8-1
US Kindle - $3.07 http://www.amazon.com/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=tmm_kin_swatch_0?_encoding=UTF8&sr=8-1&qid=1409037317
Lastly, share this post and tag people who you think would be interested.
Thank you everyone. The 7 days starts now so the offer ends this time next Tuesday (2nd September)!
After the 7 days, I will round up the total raised to the nearest "0" and post it on here. I will also screenshot the screen when I make the donation.
I will post again when this offer starts and post around the M.E. groups on here and also on Twitter.
It is available in ALL countries too but here I will post links for the UK & US Amazon:
UK Paperback - £3.94 http://www.amazon.co.uk/A-New-ME-Looking-future/dp/1499585497/ref=sr_1_1_bnp_1_pap?ie=UTF8&qid=1409036494&sr=8-1&keywords=a+new+me
UK Kindle - £1.85 http://www.amazon.co.uk/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=tmm_kin_swatch_0?_encoding=UTF8&sr=8-1&qid=1409036494
US Paperback - $6.55 http://www.amazon.com/A-New-ME-Looking-future/dp/1499585497/ref=tmm_pap_title_0?ie=UTF8&qid=1409037317&sr=8-1
US Kindle - $3.07 http://www.amazon.com/New-ME-Barry-Evans-ebook/dp/B00L1LIT6E/ref=tmm_kin_swatch_0?_encoding=UTF8&sr=8-1&qid=1409037317
Lastly, share this post and tag people who you think would be interested.
Thank you everyone. The 7 days starts now so the offer ends this time next Tuesday (2nd September)!
Sunday, 24 August 2014
ALS Ice Bucket Challenge
Hello all, although this isn't M.E. related, I've decided to make this post because it's important to support all illnesses/conditions. It's also very light hearted but raising awareness for a good cause.
I think there should be something similar for M.E. but not necessarily using ice buckets as although I didn't feel it at the time, I now have a banging headache and blurred vision. I'm actually in bed before 10pm with my electric blanket on full!!!
Here's the video:
https://www.youtube.com/watch?v=yTSQfkIp-28&list=UUCrsPBrO__GVcD3rm8nomjw
I think there should be something similar for M.E. but not necessarily using ice buckets as although I didn't feel it at the time, I now have a banging headache and blurred vision. I'm actually in bed before 10pm with my electric blanket on full!!!
Here's the video:
https://www.youtube.com/watch?v=yTSQfkIp-28&list=UUCrsPBrO__GVcD3rm8nomjw
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